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#sjogrens

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Domando Al Lobo<p>No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el <a href="https://mastodon.social/tags/blog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>blog</span></a> tuvo una barbaridad de visitas.<br>A los seguidores y a los que distéis con él por casualidad, <a href="https://mastodon.social/tags/GRACIAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GRACIAS</span></a></p><p><a href="https://mastodon.social/tags/blogger" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>blogger</span></a> <a href="https://mastodon.social/tags/bloguera" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>bloguera</span></a> <a href="https://mastodon.social/tags/Bloguers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Bloguers</span></a> <a href="https://mastodon.social/tags/Mastoblog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Mastoblog</span></a> <a href="https://mastodon.social/tags/Mastobloguers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Mastobloguers</span></a> <a href="https://mastodon.social/tags/Mastoblogger" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Mastoblogger</span></a> <a href="https://mastodon.social/tags/salud" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>salud</span></a> <a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://mastodon.social/tags/Lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Lupus</span></a> <a href="https://mastodon.social/tags/LES" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LES</span></a> <a href="https://mastodon.social/tags/SEL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SEL</span></a> <a href="https://mastodon.social/tags/EncefalomielitisMialgica" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EncefalomielitisMialgica</span></a> <a href="https://mastodon.social/tags/MyalgicencEphalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicencEphalomyelitis</span></a> <a href="https://mastodon.social/tags/Sj%C3%B6gren" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Sjögren</span></a> <a href="https://mastodon.social/tags/Sj%C3%B6grens" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Sjögrens</span></a> <a href="https://mastodon.social/tags/Fibromialgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibromialgia</span></a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.social/tags/migra%C3%B1a" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>migraña</span></a> <a href="https://mastodon.social/tags/migra%C3%B1as" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>migrañas</span></a> <a href="https://mastodon.social/tags/migraine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>migraine</span></a> <a href="https://mastodon.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>migraines</span></a> <a href="https://mastodon.social/tags/Raynaud" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Raynaud</span></a> <a href="https://mastodon.social/tags/raynauds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>raynauds</span></a> <a href="https://mastodon.social/tags/RaynaudsDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RaynaudsDisease</span></a> <a href="https://mastodon.social/tags/natura" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>natura</span></a><br><a href="https://domandoallobo.blogspot.com" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">domandoallobo.blogspot.com</span><span class="invisible"></span></a></p>
Denise Brawn (she/her)<p>My name is Denise (or Den) and I'm in Maine in the US. I live with my husband and my cattle dog mix. I like to hike, take pictures, grow things, and knit things. Oh, and I love to bake, too. I also have 2 autoimmune diseases. I've been a practicing Pagan for 12 years now.</p><p><a href="https://mastodon.social/tags/hiking" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hiking</span></a> <a href="https://mastodon.social/tags/maine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>maine</span></a> <a href="https://mastodon.social/tags/photography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>photography</span></a> <a href="https://mastodon.social/tags/knitting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>knitting</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/greenwitch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>greenwitch</span></a> <a href="https://mastodon.social/tags/pagan" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pagan</span></a> <a href="https://mastodon.social/tags/autoimmunewarrior" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmunewarrior</span></a> <a href="https://mastodon.social/tags/sjogrensdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sjogrensdisease</span></a> <a href="https://mastodon.social/tags/sjogrens" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sjogrens</span></a> <a href="https://mastodon.social/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a></p>
MightyCoyote<p><span class="h-card" translate="no"><a href="https://zeroes.ca/@StaceyCornelius" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>StaceyCornelius</span></a></span> I developed a whole-ass autoimmune disease in <a href="https://hachyderm.io/tags/perimenopause" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>perimenopause</span></a>: <a href="https://hachyderm.io/tags/sjogrens" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sjogrens</span></a> disease. It’s complex and misunderstood, but not actually rare. Current research defines it as characterized by “dryness, pain, and fatigue.” The internet is full of descriptions downplaying it, even from otherwise reputable sources. If any of you out there get sicker and sicker even with otherwise successful peri treatments, look into autoimmune diseases. <a href="https://sjogrens.org/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">sjogrens.org/</span><span class="invisible"></span></a> and <a href="https://www.sjogrensadvocate.com/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">sjogrensadvocate.com/</span><span class="invisible"></span></a></p>
MightyCoyote for Harris<p>If I hadn't found an online community for <a href="https://nerdculture.de/tags/Sjogrens" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Sjogrens</span></a> information, I would be completely lost. I don't think even my rheumatologist knows jack about this disease. So if there's a moral here - if you have some kind of chronic illness, go find an online community. I've had good success with <a href="https://www.smartpatients.com" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">smartpatients.com</span><span class="invisible"></span></a></p>
MightyCoyote for Harris<p>I have <a href="https://nerdculture.de/tags/Sjogrens" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Sjogrens</span></a> disease and significant issues with fatigue and brain fog. Neither my rheumatologist nor my PCP suggested iron deficiency. I asked to test my ferritin, which at 20 μg/L still looked "normal" to my doctor, but is probably very low for someone with a chronic inflammatory condition -- according to the paper I linked above and some others, in that case it should be 100 μg/L 😬</p>
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