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#accommodation

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Telehealth is life changing for people with disabilities, seniors and those who live in rural areas.

Disabled people had been pushing for telemedicine options for years before the pandemic hit.

Covid restrictions made telemedicine a reality, and suddenly we had the type of accommodations we always needed.

For those covered under Medicare (which is many seniors and people with disabilities), telemedicine will be cut at the end of March.

It was previously due to be cut at the end of the year, but after outcry from the disability community it received a three month extension.

It’s critical people get loud about this now. Call your local lawmakers and tell them you need telehealth to continue.

People with disabilities can’t always go to the doctor in person. Leaving our homes can take a tremendous amount of spoons and cause week long setbacks (not to mention the risk of Covid and other infectious diseases).

There’s still time to ensure this vital accommodation tool remains funded!

open.substack.com/pub/jesshone

Jess Badger Writes · medicare telehealth is set to expire in 38 days.By Jess Badger

Wish me luck over the next few months. I really feel like I’m not going to make it.

My intuition about bad things is usually good (no pun, was that a pun?) & I’ve felt this coming on for about 3 years.

I was meant to take 2 months off at the end of this year but it didn’t happen bc other people didn’t do their jobs. I haven’t found a safe place to live. #NDIS has gone to #AAT before #Christmas which I specifically asked to be done after.

If other people not doing their jobs kills me, I want it known.

Maybe it’s petty, but I will try to keep a list, & that list includes my family for making me miss out on any comforts including my own birthday since March.

It hasn’t ended, there’s no relief now my sister has moved next door.

I need more help & a safe place to live.

I keep asking. Please help.

#Pwme #LongCovid #ChronicIllness #Accommodation #Housing
#SocialWork #CommunityWork #MECFS #Abuse #Neglect #Help

@mecfs
@longcovid
@socialwork
@chronicillness
@luvenice_h@bird.makeup
@neisvoid
@ndis
@disability
@disabilityjustice

#Introduction time.
This isn’t great because I’m ill but I’d like to find my people here. Edit: I like abled people too! :)

I’m #Disabled by #ChronicIllness which is pretty bad at the moment. I have
#SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid. Hello #NEISvoid.

My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)

I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.

Oh, also trying to escape #abuse. Didn’t want to say that because I’ll wear it forever but hi.

Normally interests include #Auspol #healthcare #science #MedicalResearch #MMT #CulturalStudies #philosophy #film #FilmPhotography #music #writing & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.

twitter.com/Halcionandon for backstory.

It’s nice to be here.
Hope this place stays cosy.

(More tags: #MECFS #PwME #PwLC #MyalgicE #MyalgicEncephalomyelitis #Spoonie)

X (formerly Twitter)Anna (@halcionandon) on XInquiring mind derailed by #SevereME #LongCovid #Hypothyroidism #Migraine #POTS #ChronicPain, more #FBLC Health in hell mode-NEED SAFE HOME, DISABILITY ADVOCATE