handmade.social

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Tom Kindlon4/“The consequences are staggering:  (see image)” <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Irish ME/CFS AssociationGP Educational Webinar on <a href="https://mastodon.ie/tags/PVFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PVFS</a> and ME/CFSDr Ros Vallings, a New Zealand GP who is an expert on ME/ <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a>, will present a free talk followed by a Q&A session on Tuesday, April 8 7:30 PM for just over one hour.<a href="https://irishmecfs.org/blog/april-8-2025-educational-event-for-gps-key-messages-for-primary-care-on-the-diagnosis-and-management-of-post-viral-fatigue-syndrome-and-mecfs" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://irishmecfs.org/blog/april-8-2025-educational-event-for-gps-key-messages-for-primary-care-on-the-diagnosis-and-management-of-post-viral-fatigue-syndrome-and-mecfs</a><a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://mastodon.ie/tags/PostViralSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostViralSyndrome</a> <a href="https://mastodon.ie/tags/MedEd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MedEd</a> <a href="https://mastodon.ie/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Tom Kindlon2/Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.<a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NeuroME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Valerie Roney<a href="https://weirder.earth/@kemonine" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@kemonine</a> ppl I follow here who share lots of research stuff: <a href="https://disabled.social/@tomkindlon" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@tomkindlon</a> <a href="https://disabled.social/@ahimsa_pdx" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@ahimsa_pdx</a> (And someone else I can't remember...)Anybody else got good data nerd leads for kemo to follow? <a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://disabled.social/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCovid</a> <a href="https://disabled.social/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pots</a> <a href="https://disabled.social/tags/vagusNerve" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#vagusNerve</a> <a href="https://disabled.social/tags/cfsME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfsME</a>

Tom Kindlon3/A low sensory video with muted colors and no background music <a href="https://www.youtube.com/watch?v=P-MZqi6mUPo" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.youtube.com/watch?v=P-MZqi6mUPo</a><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

malokiIf you want to support me personally, for long-term sustainable work with Mastodon (in case Gargron doesn't want to hire me or can't keep me hired, or I can't work enough to warrant being hired), consider supporting me directly on <a href="https://mastodon.social/tags/Patreon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Patreon</a> or <a href="https://mastodon.social/tags/Liberapay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Liberapay</a>. <a href="https://www.patreon.com/maloki" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.patreon.com/maloki</a><a href="https://liberapay.com/maloki" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://liberapay.com/maloki</a> <a href="https://mastodon.social/tags/TipYourFriends" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TipYourFriends</a> <a href="https://mastodon.social/tags/cfsme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfsme</a>

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